Helpful Resources
Patient Associations
- Bile acid deficiency – Council for Bile Acid Deficiency Diseases
- Chronic granulomatous disease – Chronic Granulomatous Disease Association
- Chronic granulomatous disease – Living with CGD
- Chronic pain – U.S. Pain Foundation
- Complex partial seizures – Epilepsy Foundation
- Cushing’s syndrome – Cushing’s Support & Research Foundation
- Cutaneous lymphoma – Cutaneous Lymphoma Foundation
- Factor XIII – National Hemophilia Foundation
- Gaucher disease – National Gaucher Foundation, Inc.
- Huntington’s disease – Help 4 HD International Inc.
- Huntington’s disease – Huntington’s Disease Society of America
- Infantile spasms – Epilepsy Foundation
- Kidney stones – National Kidney Foundation
- Lennox-Gastaut – LGS Foundation
- Narcolepsy – Narcolepsy Network
- Narcolepsy – NORD
- Orthostatic hypotension – Dysautonomia International
- Phelan-Mcdermid syndrome – Phelan-McDermid Syndrome Foundation
- Pulmonary hypertension – Pulmonary Hypertension Association
- Pulmonary hypertension – PH Aware
- Thalassemia syndromes – Thalassemia Support Foundation
Copayment Assistance Organizations
- The Assistance Fund
- CancerCare
- Good Days
- HealthWell
- Leukemia and Lymphoma Society
- NORD
- Patient Access Network Foundation
- Patient Advocate Foundation
- Patient Services, Inc.
Government Agencies and Programs
- BenefitsCheckUp
- Medicaid
- Medicare
- National Institutes of Health (NIH)
- Social Security Administration
Transplant Information
Additional Resources