Caregiving 101: Basic guides on becoming a caregiver.
Physical care tips: Guides and videos to help you learn the physical tasks of caregiving.
- Caregiving College
- Mobility aid training
- Booklet: Practical Skills Training for Family Caregivers
- Search in your area for in-person trainings
Disease-specific care guides: The needs of each disease are unique.
- Caregiver’s guide to pulmonary hypertension
- Caregiver’s guide to Huntington’s disease
- Guide to Living with Thalassemia: Advice for parents and caregivers
- Caregiver tips for dysautonomia
- Gaucher disease resources for patients and families
- Phelan-McDermid syndrome resources
- Epilepsies and caregiving resources
- Hemophilia (Factor XIII deficiency) caregiving webinars
Organization: Gather and track all the information you need to stay organized while giving care. Most of these tools are downloadable, editable and printable. Keep them in a binder or “patient file.”
- Learn to create a “patient file”
- Guide to medications
- Symptom journal
- Hospital checklist
- How to be prepared for emergencies
- Doctor appointment checklist
- Caregivers Library: Useful forms
Mental health: Resources to help you navigate the mental strain of caregiving.
- Anxiety warning signs to watch for
- Tips to tame stress
- On depression and caregiving
- Apps for depression and anxiety
Additional resources
- Find a support group near you
- Caregiving fact sheets
- Simplifying your superior care journey
- Family Caregiver Toolbox
This first appeared in Community. View it here.