Here’s a worthy cause to learn more about this Huntington’s Disease (HD) Awareness Month: the importance of law enforcement training on Huntington’s disease.
In 2014, Debora and Stephen Camp shared about an encounter with law enforcement in CVC’s Community magazine. Debora, visiting a donut shop with her daughter and grandchildren, was nearly handcuffed by a police officer after someone reported her for public intoxication. After that, the Camps discussed Debora’s HD diagnosis and symptoms with their local police department to prevent any further run-ins.
Many people with HD experience similar encounters with police each year. Early HD symptoms such as uncontrolled gestures or balance issues can present like alcohol impairment. And as HD progresses, more cognitive symptoms can be misunderstood by police, including irritability, combativeness, temper, erratic driving and impulsive behavior.
Prevention
The Huntington’s Disease Society of America provides important resources on their website, hdsa.org, to raise awareness about these encounters between people with HD and law enforcement, with the goal of prevention.
The site offers training toolkits for law enforcement to help them recognize HD symptoms in possible run-ins and handle the situation respectfully. These can be requested through the site.
They suggest tips such as:
- Allowing more time for responses.
- Recognizing loss of focus and concentration.
- Asking simple, preferably “yes” or “no” questions.
One important suggestion that can apply to many with medical concerns is to wear a medical ID bracelet. Debora bought one for herself immediately after her experience. Hdsa.org also suggests carrying a card with pertinent medical information and contact info for a loved one. Printable versions of ID or profile cards can be downloaded at hdsa.org.
Learn more about law enforcement training and Huntington’s disease: