Tag Archives: alpha 1 antitrypsin deficiency

Video Testimonials

Posted on June 9, 2014 by CVCinfo

David Haygood, a patient with Alpha-1 Antitrypsin Deficiency tells about his experience with Caring Voice Coalition.

Cheryl Staveley, parent and caregiver of Meghan Sullivan, a Huntington’s Disease patient, tells her story.

Kindra Cansler, caretaker for her son Justin, an Infantile Spasms patient, tells her story.

Joyce Scannell, a Narcolepsy patient, tells her story.

Beverly McGregor, a Pulmonary Hypertension patient, tells her story.

Posted in Media Center | Tagged alpha 1 antitrypsin deficiency, HD, Huntington's Disease, Infantile Spasms, narcolepsy, PH, Pulmonary Hypertension | Leave a comment

Supported Diseases

Posted on June 9, 2014 by CVCinfo

CVC Disease Funds

Alpha-1 Antitrypsin Deficiency
Chronic Granulomatous Disease
Complex Partial Seizures
Cutaneous Lymphoma
Factor XIII Deficiency
Gaucher’s Disease
Huntington’s Disease
Idiopathic Pulmonary Fibrosis
Infantile Spasms
Inflammatory Eye Disease
Lennox-Gastaut Syndrome
Myositis
Narcolepsy
Nephrotic Syndrome
Orthostatic Hypotension
Pulmonary Hypertension
Sarcoidosis
Severe Chronic Pain
Steven-Johnson Syndrome
Thalassemia Syndromes

Click here to view a list of Helpful Resources

Posted in Supported Diseases | Tagged alpha 1 antitrypsin deficiency, Chronic Granulomatous Disease, complex partial seizures, Cutaneous Lymphoma, Factor XIII Deficiency, Gaucher’s Disease, Huntington's Disease, idiopathic pulmonary fibrosis, Infantile Spasms, Inflammatory Eye Disease, Lennox-Gastaut Syndrome, Myositis, narcolepsy, Nephrotic Syndrome, Orthostatic Hypotension, Pulmonary Hypertension, Sarcoidosis, Severe Chronic Pain, Steven-Johnson Syndrome, Thalassemia Syndromes | Leave a comment

Donate Now

Posted on August 20, 2013 by CVCinfo

Give Financially

Caring Voice Coalition has established a safe, secure way for you to make an on-line donation. By donating to Caring Voice Coalition, you are making a difference in the life of a patient. Caring Voice Coalition and our donors have a common goal – to help as many patients as possible. The Caring Voice Coalition is a qualified 501(c)(3) tax-exempt organization and donations are tax-deductible to the full extent of the law. Our Federal EIN is 26-0058446.

Please fill out this form and click submit to be taken to our secure payment feature where you’ll be able to make a donation with a debit or credit card.

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