Tag Archives: Gaucher’s Disease

Helpful Resources

Posted on July 22, 2014 by CVCinfo

Partnerships

• LegalShield

Caring Voice Coalition has partnered with LegalShield to offer CVC patients discounted legal plan membership. For a small, flat monthly fee, CVC patients can become LegalShield members, with access to services including unlimited legal advice on any topic, living wills, estate planning, health care proxies, insurance coverage, and identity theft protection. With LegalShield, CVC patients have access to caring, top-quality attorneys from highly-rated law firms across the country at very low cost.

• NeedyMeds Drug Discount Card

NeedyMeds, founded in 1997, is a non-profit information resource devoted to helping people in need find assistance programs to help them afford their medications and costs related to health care.

Patient Associations

• Alpha-1 Foundation
• Chronic Granulomatous Disease
• Complex Partial Seizures
• Cutaneous Lymphoma
• Factor XIII
• Gaucher’s Disease
• Huntington’s Disease
• Idiopathic Pulmonary Fibrosis
• Infantile Spasms
• Lennox-Gastaut
• Myositis
• Narcolepsy
• Nephrotic Syndrome
• Orthostatic Hypotension
• Pulmonary Hypertension
• Sarcoidosis
• Steven-Johnson Syndrome
• Thalassemia Syndromes

Copayment Assistance Organizations

• The Assistance Fund
• CancerCare
• HealthWell
• Leukemia and Lymphoma Society
• NORD
• Patient Access Network Foundation
• Patient Advocate Foundation
• Patient Services, Inc.

Government Agencies and Programs

• BenefitsCheckUp
• Medicaid
• Medicare
• National Institutes of Health (NIH)
• Social Security Administration

Transplant Information

• United Network for Organ Sharing (UNOS)
• National Foundation for Transplants

Posted in How We Help | Tagged Alpha-1 Foundation, BenefitsCheckUp, CancerCare, Chronic Granulomatous Disease, complex partial seizures, Cutaneous Lymphoma, factor XIII, Gaucher’s Disease, HealthWell, Huntington's Disease, idiopathic pulmonary fibrosis, Infantile Spasms, Lennox-Gastaut, Leukemia and Lymphoma Society, Medicaid, Medicare, narcolepsy, National Foundation for Transplants, National Institutes of Health (NIH), NORD, Patient Access Network Foundation, Patient Advocate Foundation, Patient Services Inc, Pulmonary Hypertension, Social Security Administration, Thalassemia Syndromes, The Assistance Fund, United Network for Organ Sharing, UNOS | Leave a comment

Supported Diseases

Posted on June 9, 2014 by CVCinfo

CVC Disease Funds

Alpha-1 Antitrypsin Deficiency
Chronic Granulomatous Disease
Complex Partial Seizures
Cutaneous Lymphoma
Factor XIII Deficiency
Gaucher’s Disease
Huntington’s Disease
Idiopathic Pulmonary Fibrosis
Infantile Spasms
Inflammatory Eye Disease
Lennox-Gastaut Syndrome
Myositis
Narcolepsy
Nephrotic Syndrome
Orthostatic Hypotension
Pulmonary Hypertension
Sarcoidosis
Severe Chronic Pain
Steven-Johnson Syndrome
Thalassemia Syndromes

• Click here to view a list of Helpful Resources

Posted in Supported Diseases | Tagged alpha 1 antitrypsin deficiency, Chronic Granulomatous Disease, complex partial seizures, Cutaneous Lymphoma, Factor XIII Deficiency, Gaucher’s Disease, Huntington's Disease, idiopathic pulmonary fibrosis, Infantile Spasms, Inflammatory Eye Disease, Lennox-Gastaut Syndrome, Myositis, narcolepsy, Nephrotic Syndrome, Orthostatic Hypotension, Pulmonary Hypertension, Sarcoidosis, Severe Chronic Pain, Steven-Johnson Syndrome, Thalassemia Syndromes | Leave a comment